Quick Reference Guide

The Passport For Care® (PFC) application is an innovative healthcare project developed by researchers at Baylor College of Medicine and the Texas Children’s Cancer Center that addresses the need to provide patients and survivors of chronic illnesses with increased access to their medical information, healthcare guidelines, and appropriate follow-up care recommendations. The PFC is an interactive Internet resource that provides the user with accurate, timely, and individualized healthcare information available electronically 24/7. The PFC was developed for survivors of childhood cancer based on the Survivorship guidelines provided by the Children’s Oncology Group (COG). The PFC provides tailored guidelines in a computerized/digitized and automated way by combining the treatment input data with the COG guidelines to generate a comprehensive survivorship care plan with follow-up care recommendations and educational information.

We encourage you to explore how the PFC can be used as a patient database. The reporting function allows your clinic to use this site as a patient database and customize the returned set of records using a number of options to filter included patients and control which data is displayed. However, keep in mind that the Passport for Care is not a replacement for an Electronic Medical Record. Additionally, the Passport for Care has been further expanded to include the Survivor website that allows the survivor 24/7 access to their own treatment information, follow-up care recommendations, and thus make it sharable with any healthcare providers.

Logging on:

Step 1: Note your user name and password. Usernames and passwords are unique to each individual and should not be shared.

Step 2: Go to https://www.passportforcare.org to access the PFC.

Step 3: Enter into the designated fields the assigned username and password and click the “Sign In” button.

Once logged in, you will notice your name at the top of the screen. Verify that it is the correct name.

Open

Logging off:

Step 1: Click on your name on the top right.

Step 2: Find and click the “Sign Out” button.

Once the “Sign Out” button is clicked you will be logged off and you will be directed to the PFC site’s login page.

For security purposes, we recommended that you enable the two-factor authentication that will help you keep your account secure. Two-factor authentication is an extra layer of security for your Passport for Care account that will help ensure you’re the only person who can access it even if someone knows your password.

By enabling two-factor authentication, you will use the token sent to the primary token device every time you log in. You may select either one of the following authentication methods:

• Text message authentication will send a text message to any phone number you wish to receive your authentication token. Before completing, this method will have you validate your phone number by entering a token sent to your phone.

• Token generator authentication will auto-generate a token on your dedicated smartphone app, such as Google Authenticator. Before completing, you must scan the QR code using an app such as Google Authenticator to complete the set-up. If you are unfamiliar with how applications like Google Authenticator work - see How to Set up 2-Step Verification.

Once complete, both authentication methods allow you to set-up the following backup methods in case your primary token device is unavailable:

• Add Backup Phone Numbers - can be a set of multiple phone numbers

• Generate Backup Tokens - auto generates a set of codes you may safely store for later use

• Disable the two-factor authentication method

The PFC Cancer care summary is based on the “Summary of Cancer Treatment” document provided by the Children’s Oncology Group.

There are two ways to view your clinic's care summaries, comprehensive view (default), and abbreviated view.

Users can toggle back and forth from one view to the other. Information entered into one view feeds into the other. Both will generate the same set of follow-up guidelines.

• The comprehensive view displays all entry fields when entering patient information and displays all the information submitted when viewing the care summary page. This view allows for the entry of additional treatment summary forms that do not affect guidelines generation but may help create a more complete record, for instance, treatment summaries such as complications/late effects and adverse drug reactions. Remember the survivor can see these entries on their Survivor website account, so please include them when applicable, as they may be valuable for the survivor and outside providers.

• The abbreviated view only displays required fields on forms when entering patient information. These fields are required to generate guidelines. This view only displays the required fields when viewing the care summary page and does not collect any additional information.

The comprehensive view is a unique view of the care summary page only. The view displays all entry fields when entering patient information and displays all the information submitted when viewing the care summary page. Information entered into the comprehensive view will display for the survivor to see on their Survivor Website.

The comprehensive view allows for the entry of the following treatment plans:

• Primary Diagnosis - one required

• Relapses - one or more possible

• SMN - one or more possible

Multiple individual treatment summaries can be assigned to a treatment plan. Those treatment plans include:

• Radiation

• Surgery

• Chemotherapy

• Transplant

• Other Therapeutic Modality

The Comprehensive view also collects the following additional information:

• Treatment Centers

• Protocols

• Complications/Late Effects

• Adverse Drug Reaction